Walking it Out

A few months back while visiting family, I was able to take my grandsons to Home Depot for the Saturday morning workshop. I appreciate how they set up a table and provide materials and instructions for each child. At first I felt a bit disappointed as I thought we were attending a ‘class’ style event…

He Turns it Around

“I believe it’s not primary. It’s secondary.” My mind hit a wall – yet at the same time was spinning to keep up with all that was being said. Since the heavy pollen hit us with an early spring, Raphael has struggled again with his lungs. It was the same timeframe last year when he…

One Simple Word

Trust. That’s the word I heard this morning. One simple word. But so much is wrapped up in the action behind the word. And so often I feel inadequate. Last night my heart was full. It was the last evening we had with my oldest son as he was in town for a friend’s wedding….

Fully Trusting

Faithfulness. His promise never fails. I may not always understand. I may have my questions of ‘why’s’ or ‘what if’s’. But no matter where I am in my emotional process, He remains faithful. Transplant happened in January. By all charts, he should feel better now. Yet the charts did not see unrelated issues. Today was…

In Faith We Stand

Three months after day 100….. It’s been awhile since I posted an update. Where to begin? With all that has happened since the transplant, it’s easy to wonder, “Does this mean transplant didn’t work?” The answer to the question is no. It is not a reflection on the effectiveness of the transplant. It’s just simply…

Today’s gathering. Just two. Plus One. On this Pentecost Sunday, we took time to worship Him together. We had just walked through a difficult week. Most of Saturday you could find our hands just like this – holding on to each other. Today I reflected on the past week. Early in the week he was…

Not Alone

Sunday. The day that I have always set aside as a day to go worship my Lord. But not today. Today was literally a day of rest as yesterday was a bit unsettling. Friday evening we needed to up the oxygen a bit. By Saturday, we knew we needed to adjust it more as his…

He Still Holds Us

Days after Day +100 I know many have waited for me to post about tests results. Well, I don’t even have words. In fact, doctors don’t either. But Monday morning found us back in ER. Results mostly have been great. So why then did his oxygen once drop significantly? Why was fluid around lungs again?…

Full Circle

Day +97 A light in the midst of a tough day!! As I sat next to the bed yesterday praying off and on with Ralph, I heard a knock on the door. Nothing new. You get knocks all day long as each nurse, doctor, PCA, etc, come in. Yet as the person walked around the…

Count it Joy

Day +90 90!! We just hit the first milestone!! Yet the weekend has been rough. He has struggled for breath to the point of gasping for air often. Whether this is a result of the fluid in his lungs finally breaking up and coming out or the bad allergy season or a combination, we don’t…